Research Programmes

The basic structure of the CIBERER takes the form of Research Programmes (Spanish ”PdI”), which enable the CIBERER to group together in areas of scientific interest. Organisation in PdI enables optimising the assignment of resources, reinforcing research groups, fostering scientific technical and clinical cooperation, to thus improve scientific results and obtain a greater degree of accomplishment of the strategic objectives set.

The structuring of programmes at CIBERER is complex, to a large extent due to the idiosyncrasy inherent to RDd, a field of medicine and public health which covers 7000 nosological entities with a transversal component in the set of the human organic systems as a whole. To be able to get over this complexity in a scientific, logical and operative manner, an approach was adopted in which these PdIs are backed by biomedical research instruments, specifically the Biomedical Intramural Projects on RD ER (PIBER) and the Instrumental Transversal Platforms for supporting RD (PITER).

PdI programmes are intended to organise the groups on the basis of the larger medical areas in which they carry out their research. Seven programmes are considered conceptually, taking into account the basic biological and historical aspect characterising each of the RD, either separately or as a nosological group of diseases:

The research groups join the different programmes in line with the diseases in which they do their scientific work and the aspects of their research on these. The groups form part of one or more programmes by means of their participation in Research Lines defined on the basis of the programme itself and the disease or  group of diseases on which the most relevant research of their group is done in the field of rare diseases. Participation by research groups in PdI is specifically founded on the following criteria:

  • A high scientific level in the disease(s) in question.
  • Proven capability for interaction and cooperative research among the groups. All the CIBERER groups working in the field must compulsorily cooperate in the line of research.
  • Clear interest for undertaking translation work, including clinical trials and transfer action.
  • Promotion of internationalisation action, with a presence in international scientific and clinical forums.

The operation of PdI Research Programmes is implemented by means of scientific, technical, translational and training  instrumental measures through tools for support for research.

The PdI model means an opportunity to renew the research done by the research groups and for cooperation between them, great capacity for adaptability to the requirements of translational research and development of a more dynamic model of research into RD.